Yesterday I was filling in my calendar with work-related stuff, all the way into November (yes, I like to plan a long way out).
Suddenly, I had a sinking feeling in my stomach, and I had to sit with it for a bit.
I know when this happens, it's happened alot in the past, but this one caught me off guard...and so I stopped and sat and listened...
The answer came up pretty
fast...my son will be approaching his 30th birthday in December, unheard of in boys with DMD (Duchenne Muscular Dystrophy).
In other words, he's at the top of his game...
So what's a mother to do?
She continues to live her life from a place of possibility and joy, joy for all the
years we have had.
And who knows, there may be a miracle down the road.
But to watch your son's strength dwindle over the years, I do admit (and I don't share this often to others), it has been a truly grueling part of his journey, our journey, as a family.
It doesn't get easier,
really. It's like a clock ticking away in your brain.
My son senses my angst and he is always there to lift me up.
"That's just the way it is, mom,' he says with such maturity and...well...grace.
And so we push on, year after year.
One of our goals this year is to get him a new van so he can do his yearly road trip, something he waits all year to do. It's his only true vacation (he cannot fly given his condition).
His old 2003 van has given up the ghost. She was a good one, 330,000 km on her. But she gave out on us through Rogers pass (you Canadians know what that climb is like, through the tunnels!), with no
cell service and no hotel room in the closest town, Revelstoke. It was a long night on the side of that road...
And so, our quest for a new van has begun....
Our GoFund me request is
doing ok, but we need a push, and we would love it if you could help us.
So please, if I have supported you in any way, with my posts, my videos, sharing my health and wellness info with y'all over the years, I'm asking for your support now...
...from one mother to another.
Anything
will help. And for those of you that have given, we see you, and I have personally thanked all of you via DM...it means SO much to us. Thank you!
Life is a journey, and we're hoping to have one last summer's journey with our boy....this year, we're hoping to get to Sun Peaks and Kelowna, BC.
Thank you again for your kind wishes and support along the
way.
XOXO!
Blessings,
Karen, Neil and Tristan.
